ADRI’s Mesothelioma Support Service

ADRI’s Mesothelioma Support Service addresses the needs of patients with malignant mesothelioma and supports their families.

At ADRI our registered nurses utilise their wealth of knowledge and experience of patient care and supporting carers; drawing from personal experience, current survivorship research, cancer care networking and carer need research to provide telephone, face-to-face and group meeting support. The Mesothelioma Support Service works with established professional agencies, health professionals and local communities across NSW to provide current evidence-based clinical information and support.

Ms Jocelyn McLean Mesothelioma Support Coordinator

Ms Jocelyn McLean, MSN (Res)

Support Coordinator

Jocelyn has many years’ experience caring for patients following surgery for lung cancer and mesothelioma at Royal Prince Alfred Hospital. Jocelyn developed a ‘well living support programme’ for survivors and carers, and co-authored, with Professor Brian McCaughan, a book entitled: Diagnosis & Treatment: The Journey of a Patient with Malignant Pleural Mesothelioma’. She also contributed to the development of evidence based Guidelines for the Diagnosis and Treatment of Malignant Pleural Mesothelioma published by ADRI in 2013 and the Understanding Mesothelioma. A guide for people with cancer, their families and friends published by Cancer Council Australia in 2019.

Pamela Logan

Mrs Pamela Logan RN, Dip Comm Nur, MSC (Health Sciences)

Support Coordinator

Pamela is a registered nurse who has additional qualifications in Community Nursing and Health Sciences. She has worked in the UK, NZ and Australia with many years’ experience in acute surgery, community nursing, child and family health, young disabled and palliative care. She has worked as a researcher and co-authored work published in the area of clinical communication and medical errors. Most recently she has been working the area of chronic disease management in the over 75’s and as a medical chronologist (Asbestos Related Pleural Disease).

ADRI Support Services Flyer

Mesothelioma Support Service Flyer

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Addressing the needs of patients with malignant mesothelioma and supporting their carers and families.

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Support Group Meetings

Mesothelioma Support Group

Venue: Revesby Workers Club (RWC)
2B Brett Street, Revesby NSW 2212

Day: Always a Tuesday

Time:  11:00 am to 1:00pm

Transport: A train service almost to the Club, ample free parking,

Why RWC: It is accessible to those folk in western, southern and eastern Sydney.

Next Meeting: To be announced.
Currently this group meets every second month for patients and carers.

EPP Well Living Group

Venue: Drummoyne Sailing Club
2 St Georges Cres, Drummoyne NSW 2047

Day: Always a Thursday

Time:  10:00 am to 2:00pm

Transport: Ample free parking

Next Meetings: To be announced for 2020

Currently this group meets three times a year.

Bereavement Group

Venue: iCare, Dust Diseases Clinic,
115 Pitt Street, Sydney NSW 2000

Day: Friday

Time:  10:30 am to 12:30 pm

Transport: Public transport (train to Wynyard or Martin Place stations)

Next Meetings: To be announced for 2020
Currently this group meets on a needs basis.

Please contact Jocelyn (02 97679854 or support@adri.org.au ) if you would like to attend and we will connect you to our notification list.

Activities

Meso March

Date: Sunday 3rd May 2020 - save the date!

Striding toward a cure for asbestos related disease

ADRI’s Annual Meso March in May  is  held on the first Sudnay in May to show support for people living with mesothelioma.

(details to be announced shortly)

Q&A Part 2

Date: Monday 6th May 2019

A panel discussion about Part 2 of a mesothelioma journey: when treatment stops working, how to minimize symptoms, maximise support and have difficult conversations around early end of life.

To register for the Q&A Part 2 please rsvp to: Jocelyn or Joanne – email support@adri.org.au or telephone 02 97679854 by Thursday 2nd May 2019

Q&A Part 1

Date: Monday 7th May 2018

The Q&A Part 1 was an opportunity for patients, families and health professionals to meet with a panel of 12 mesothelioma experts to discuss the latest treatments, symptom management and living with dignity.

The 2-hour session can be viewed by clicking here.

Can We Help You?

  • Have you just been diagnosed with malignant mesothelioma?
  • Do you need more information?
  • Are you a carer for someone with malignant mesothelioma?
  • Are you living with malignant mesothelioma?
  • Are you exploring and/or reviewing treatment?
  • Have you been exposed to asbestos?
  • Do you need to talk?

Need To Talk?

Contact Jocelyn:

Monday – Friday 9am-5pm

T: + 61 (0) 2 9767 9854
F: + 61 (0) 2 9767 9860
Toll Free: 1300 237 400 (within Australia)
E: support@adri.org.au